Pearl Jam guitarist Mike McCready: Rock Star Life and Crohn's Don't Mix

Pearl Jam guitarist Mike McCready, who has battled Crohn's disease for 20 years, says the rock star life and Crohn's don't mix.

Crohn's disease, a type of inflammatory bowel disease (IBD), is a condition in which the lining of your digestive tract becomes inflamed, causing severe diarrhea and abdominal pain. The inflammation often spreads deep into the layers of affected tissue. Like ulcerative colitis, another common IBD, Crohn's disease can be both painful and debilitating and sometimes may lead to life-threatening complications.

In a live and very candid online interview on October 9,2007 McCready told Healthtalk listeners how he's managed his Crohn's disease--a journey that wasn't always easy. This journey was one that forced the talented musician to take a hard look at his lifestyle and how it affected his body, which at times failed him at the most in opportune times--including when he was traveling on a tour bus, onstage in front of thousands of fans and even driving around Seattle in his car.

What I found particularly interesting, was McCready's openness. He admitted to self medicating with marijuana, valium vicodin to quell the pain and escape from the reality of Crohn's.

"I was self-medicating because of the burden of dealing with Crohn's," McCready said. "I wanted to do drugs to feel better about having Crohn's." Ironically, his behavior made his symptoms worse, as did smoking, which he says is the "worst thing for someone with Crohn's."

"I could tell my Crohn's was 10 times worse when I smoked--I could feel it in my intestines as soon a I took a hit."

But he eventually realized his self-destructive ways were not only making his Crohn's disease worse, it was hurting his family and friends, who finally intervened.

Breaking his bad habits

McCready quit smoking cold turkey and entered a rehab and medical detox program. In his interview, McCready couldn't stress enough how crucial it is for young Crohn's patients to listen to their doctors and not try to self-medicate with drugs and alcohol, like he did. As a self-proclaimed advocate for Crohn's disease (he has even inspired his fans to raise money for Crohn's reaserch, summer camps and awareness) and as a spokesperson for the Crohn's and Colitis Foundation of America, McCready says he is most excited about helping others live better with the disease, especially young people.

He mentioned a book, Breaking the Vicious Cycle, which he credits as a jump-start to his remission. Although, it is a very strict diet, eliminating all starches and refined sugars, McCready said it was a great way to undertsand how diet plays a significant role in managing Crohn's disease.

Now, McCready says his diet is mostly a lot of fish and rice, not a lot of sauces starches or refined sugars. After trying a vareity of meds over the years, including Remicade and Prednisone, McCready is now managing his disease with weekly self-injections of Humira. He also takes probiotics which he says help him have firmer bowel movements.

McCready says he's been in remission for two years, the longest period of time he gone without any flare-ups. But he's still concerned and appalled at the way insurance companies treat Crohn's patients, requiring them to first pay for meds out of pocket to see if they work--before the insurance company will pay.

"I've had to go through this prior-authorization twice--and I have a big problem with this. It should be about helping people who are sick and it's all about the bottom line. If this happens to me and I can afford it, I can only imagine what poor people and kids have to go through."

As for his best and worst moments living with Crohn's, McCready says his best is getting to talk about the disease, meeting people, especially kids, who are living with Crohn's.

The worst?

McCready says he's had lots of those, and yes, he's been onstage, in extreme pain with no other choice but to soil his pants right there in front of his band (who he says know all about his condition and are extremely supportive) and thousands of fans.

But opening for his favorite band of all time, the Rolling Stones, takes the cake.

"We were opening up for Rolling Stones in Oakland and a minute before we had to go on I had a Crohn's attack...I'm about to lose it and I told Eddie [Veder] to open with "Sometimes" since I'm not really in it. I ditch and go find a bathroom. So there I am in the a porta-potty listening to us [Pearl Jam] open for the Rolling Stones.

Want more?

Listen to Mike McCready's full interview at Heathtalk

What you need to know:

Signs & Symptoms of Crohn's disease

IBS and IBD: Q & A

Crohn's Diagnosis Not Always Easy: Read Jill's Story

Get Support

Join Patient Advocate Jill Sklar's Crohn's and Colitis Support Group

Read Living With Crohn's